This is Batten Awareness Weekend. Visit the Batten Disease Support and Research Association website to learn about a terrible disease that makes life on earth so short. This sweet picture of Jenni* and Celia is being used in BDSRA's "Forget Me Not" campaign. Go to Andy & Jenni's blog to read their "forget me not" tribute to Celia. Jenni told the family's story in a post here. Celia was featured in a picture for the 2012 Neurobiology of Disease in Children Symposium which focused on Batten Disease.
Jenni and Andy have generously and graciously shared their story so others can learn about Batten Disease. Increased awareness will hopefully lead to more research and finally - a cure.
"I'll always be with you." So says Winnie the Pooh in the above quote. Indeed Celia will always be with us, even though we are apart. She brought much love into many lives in her short time here on earth.
If ever there is tomorrow when we're not
together... there is something you must always
remember. You are braver than you believe,
stronger than you seem, and smarter than you
think, but the most important thing is, even if
we're apart... I'll always be with you.
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